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rdd 2012. 02. 25-én, a Magyar Mezőgazdasági Múzeumba várunk minden sorstársat és érdeklődőt, a RBV hazai központi rendezvényére, az eddig megszokott színes, izgalmas családi programokkal és konferenciával! Átfogó téma: Szolidaritás, és a Ritka Betegségek Magyar Nemzeti Terve Részletek folyamatosan frissítve találhatók a hazai és nemzetközi honlapokon: Ritka Betegségek Világnapjának weboldala Nemzetközi honlap

 

 

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