Autoimmun betegség /Good-Pasture/

Az én 3. lányom autimmun beteg, igaz nem veleszületett,hiszen 12,5 éves koráig még nagyon beteg sem volt.Akkor pár hét alatt tönkrement a veséje,mi már csak azt vettük észre hogy leállt mindkettő.Életveszélyes állapotban kerültünk a pécsi Kerpel Fronius gyermekkórházba.Bocs de le kell írnom a kórház nevét,hiszen itt mentették meg az életét.Azonnal dializálni kezdték,és vizsgálni hogy mi okozta ezt az állapotot.Iszonyú eredményeink voltak.Aki egy kicsit is jártas a vesebetegségekben annak nem kell mondani mi az hogy 2800-as kreatin/a normál érték 120-ig jó/.A veséjén már nem tudtak segíteni,ezért tavaly augusztusban transzplantálták.Úgy volt hogy az apukája veséjét kapja meg,már minden eredményünk,kórházi időpontunk a műtétre megvolt,amikor volt egy veseriadónk.Apa tartalékos maradt-remélem soha nem lesz rá szükség.DE az alapbetegségünk ami ezt okozta kiderült a Good-Pasture autoimmun betegség.Próbáltunk utánajárni hogy ez a továbbiakban mivel járhat,mik a jellemzői,de annyira ritka hogy pár sornál többet sehol nem találtunk.Ezért szeretnék kapcsolatot teremteni olyan betegekkel akiknek ez a betegségük.Kérlek benneteket ha tudtok ilyenről,írjatok.De azon kívül is szívesen beszélgetek bárkivel.

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